For your convenience, we have provided a number of
links to valuable services, resources and helpful information.
Information and legal advance directive instruments for all states are available at:
www.caringinfo.org/.
Hospice Association of America
228 7th Street SE
Washington D.C. 20003-5809
Phone: 202-546-4759
An
affiliate of the National Association for Home Care with consumer information
about how to select a hospice program.
http://www.nahc.org/
National Hospice Organization
1901 N. Moore Street #901
Arlington, VA 22209
Hospice Helpline: 1-800-658-8898
National
non-profit organization devoted exclusively to hospice. For lists of
hospices by county and general information about hospice.
http://www.nho.org/
Massachusetts Health Care Decisions
P.O. Box 417
Sharon, MA 02067
Non-profit
organization that provides public and professional education on ethical
issues in health care, including those at end of life.
Aging
With Dignity
Purchasing directions for "Five Wishes,"
a simple document to put your "wishes" in writing should you
become seriously ill and unable to speak for yourself.
Telephone: 850-681-2010
www.agingwithdignity.org
Americans
for Better Care of the Dying
A non-profit organization dedicated to social, professional, and policy reform to improve care for persons with serious
illness and their families. Includes Agitator's Guide: 12 Steps to Get Your Community Talking about
Dying.
www.abcd-caring.org
Caregiving
Web Site
Information about health and wellness of the family caregiver, bill management, home care help, community support,
free messaging.
www.caregiving.com
End-of-Life:
Exploring Death in America
A series from National Public Radio including
reference lists, broadcast transcripts, and Real Audio clips.
www.npr.org
Growth
House: Guide to Death, Dying, Grief, Bereavement, and End-of-Life Resources
An award-winning gateway to resources for life-threatening
illness and end-of-life issues.
www.growthhouse.org
Hospice
Foundation of America
Resources, hospice locator guide, education opportunities,
and general hospice information.
Telephone: 305-538-9272
www.hospicefoundation.org
Innovations
in End-of-Life Care
An international, online journal, committed to
more humane, comprehensive, and coordinated care for dying persons and
their families.
Telephone: 617-618-2185
www.edc.org/lastacts
Massachusetts
Commission on End of Life Care
A comprehensive resource guide and directory of end-of-life care resources and services available throughout Massachusetts.
www.endoflifecommission.org
Massachusetts
Compassionate Care Coalition
A coalition of individuals and organization who
seek to improve end-of-life care in Massachusetts.
Telephone: 617-964-1196
www.massccc.org
Massachusetts
Medical Society
A professional membership organization providing
a web site on health care proxy, advance directives, discussion guides,
and links to other resources.
www.healthcareproxy.org
Partnership
for Caring
Resource for living wills and medical powers of
attorney.
Telephone: 1-800-989-9455
www.partnershipforcaring.org
US
Living Will Registry
The Registry electronically stores advance directives
and makes them available directly to hospitals across the country through
an automated system. This storage service is free and confidential.
www.uslivingwillregistry.com
Epidemiology of Dying & End-of-Life Experience
An online, searchable catalogue of data about care at the end of life. It was developed by The Carolinas Center for Hospice and End of Life Care and The National Hospice and Palliative Care Organization (NHPCO.) The website provides links to public data on decedents, cause of death and experience of end of life. The value-added of EDELE is that the time-consuming Internet research has been done by EDELE researchers. Users can search by topic, state, or a set of pre-written questions. Each search returns a list of websites that display data matching the search parameters, plus information about the data such as format, frequency of update, source, etc. From the search results list, users go directly to tabular, graphic or narrative data.
http://www.edeledata.org
Hard Choices for Loving People: CPR, Artificial Feeding, Comfort Care, and the Patient with a Life-Threatening Illness, by Hank Dunn, A & A Publishers, Inc. 4 th Edition, 2001
A resource for professionals, patients and their families regarding end-of-life decisions
http://www.hardchoices.com/
Hospice and Palliative Nurses Association
A nursing organization of over 9,200 members dedicated to promoting excellence in End-of-Life nursing
http://www.hpna.org
Massachusetts Bereavement Services
http://bereavementservicesma.org
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